ĎGet moving!í Exercise can relieve symptoms of Parkinsonís disease

September 7, 2015

MIAMI ó Claire Hackett, a retired dietician, never saw herself as a "jock."

But at 77, the Palmetto Bay, Fla., mother of seven is enrolled in a twice-weekly indoor cycling class at the UHealth Fitness and Wellness Center west of downtown Miami. She walks the treadmill and takes yoga classes at the Y and takes chair yoga and music therapy classes at her local park.

Sheís got a new bag, too. A punching bag. "Iíve also taken up boxing," Hackett said.

The origin of all this activity can be traced back seven years, when Hackett was diagnosed with Parkinsonís disease, a neurological disorder that affects about 1.5 million Americans, according to the National Parkinsonís Disease Foundation. Parkinsonís, for which there currently is no cure, is characterized by the loss of dopamine neurons in the brain stem.

As Parkinsonís progresses, motor and non-motor skills may decline, leading to rigidity and gait disorders, tremor and cognitive loss. High-profile patients like former U.S. attorney general Janet Reno, singer Linda Ronstadt, actor Michael J. Fox, boxing champ Muhammad Ali and former Major League catcher Ben Petrick, who was diagnosed at 22, have put a face to the disease and promoted awareness.

Experts suggest Hackett is on to something with her burst of activity. Some recent studies, including by the Cleveland Clinic in Ohio, published in 2008, found that patients with Parkinsonís showed a 35-percent decrease in symptoms after participating in a cycling program. A study in 2012, by researchers at Kent State Universityís department of exercise science, also found that exercise and movement therapies benefited patients with Parkinsonís, but there remains little consensus on the optimal mode or intensity of exercise.

"All of this information that is coming in dovetails with what we, the establishment, are promoting with physical therapy or exercise as part of our daily recommendations to our patients," said Dr. Carlos Singer, director of the Parkinsonís Disease and Movement Disorders at the University of Miamiís Miller School of Medicine.

"Exercise is the hot topic in neurology and the neurology of Parkinsonís disease," Singer said. "There is evidence coming in that it makes a difference in slowing down the progression of Parkinsonís, and itís good physically and for cognitive ability ó the ability to think clearly and for better memory."

The doctorís advice? Get moving.

"Exercise seems to release one of our natural proteins, which is called the growth factor, and the growth factor has an influence on making our brain neurons ó the nerve cells ó more fortified, with more vigorous connections. Thatís one of the theories on why exercise may be working," Singer said.

Given the medical communityís enthusiasm over the results so far, the National Parkinsonís Foundation partnered with UHealth Fitness and Wellness Center to create a Cycle for Parkinsonís class at the Miami medical venue. The program is free for patients and (space permitting) for their caregivers, funded by a $22,000 grant. Classes are 60 minutes apiece, twice weekly.

The class is held on stationary bikes. Unlike the Cleveland study, which used tandem bikes in which a patient and a captain are paired on a bike, with the captain generally setting the pace, UHealthís Cycle for Parkinsonís class offers individual bikes, much like those found in a traditional gymís class. Patients, guided by trainers, can proceed at their own pace or take a break.

Cycle for Parkinsonís launched with a three-month pilot program in January for about 15 patients and a handful of their caregivers.

The goal, said Brittany Dixson, the Wellness Centerís health fitness specialist: "Improve the quality of life for those with Parkinsonís. We saw improvements. These participants did pre- and post-testing, and they felt better, there were aerobic capacity improvements, some strength improvements. A lot of time with Parkinsonís, they feel alone or isolated, and a group setting gives an aspect of social benefits."

Hackett, the Palmetto Bay mom, was one of the participants in the 10-week pilot and enrolled in the current program, which began in late June.

"Since Iíve had Parkinsonís, the exercise has helped my symptoms," Hackett said. "Iím stronger, I have more energy. Iíd have difficulties walking with Parkinsonís and fatigue, but the exercise definitely helps that."

These days her husband, Bob, who does not have Parkinsonís, joins Hackett for classes. Her family is impressed with her exercise routine and the results, she said.

"They think itís great, they really do. I never thought Iíd be doing that. I do enjoy it. I canít say itís easy; itís challenging."



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