BERGEN
COUNTY, N.J. - Frank Piccininni was more than just a
proud father the first time he rolled a ball to his son,
Christopher. He was a proud soccer coach.
‘‘I’m constantly kicking balls around the
house, and he kicked it before he would pick it up,’’
the boys soccer coach said. ‘‘That made me very
happy.’’
Frank and his wife, Jacky, treasure every ball
Christopher kicks, every smile, every laugh, even every
mess he makes around the house. Because it reminds them
that when faced with a decision no parents should ever
have to face, they made the right choice.
A little over a year after being told their
10-week-old child ‘‘might not make it through the
night,’’ the Piccininnis celebrated the holidays
they didn’t have with their son last year. And the
first anniversary of his life-saving heart transplant.
‘‘You learn quickly that the holidays and the
shopping and all the other stuff don’t mean anything,’’
Jacky Piccininni said from her Fair Lawn, N.J., living
room. ‘‘Family is what’s important. We will have
him here, with us, and for that we’re thankful.’’
The Piccininni house is a curious contradiction. It’s
filled with the balloons that 18-month-old Christopher
loves, shaped like pumpkins, smiley faces, and
airplanes, right alongside signs that remind the few
visitors the Piccininnis have to remove their shoes at
the front door and wash their hands often.
Christopher is as normal as a child who must eat
through a feeding tube and take as many as 13
medications a day can be. He loves to watch airplanes
flying overhead and the fish swimming on his father’s
computer screensaver. What furniture he can’t move, he’ll
simply climb over.
He loves ‘‘Sesame Street’’ and ‘‘The
Wiggles’’ and without any provocation will climb on
your lap and honk your nose as if it were the bright red
nose on a clown.
‘‘He is a funny child with a great sense of
humor,’’ Frank said. ‘‘When he laughs, his
personality shows right through.’’
The Piccininnis nearly lost all that 10 weeks after
Christopher was born a healthy 8 pounds, 11 ounces on
June 11, 2001. It all started with a simple cold.
‘‘My mother told me the night before that he wasn’t
breathing right,’’ Jacky said. ‘‘I was
embarrassed to bring him to the doctor because I had
just been there the week before. When he wouldn’t eat,
I called my sisters, I called my friends. Finally I
called the doctor and they told me to bring him in.’’
Ten minutes after she reached the doctor’s office,
Christopher’s blood pressure dropped and he started
turning blue.
‘‘Then all hell broke loose,’’ Jacky said.
‘‘It was chaos.’’
The doctor, with the help of another from a nearby
office, revived Christopher, and an ambulance rushed him
and Jacky to St. Joseph’s Hospital and Medical Center
in Paterson, N.J. A Teaneck, N.J., police officer pulled
Frank off the practice field.
‘‘It was terrifying,’’ Frank said. ‘‘All
he told me was that my son had been taken to St. Joseph’s
in Paterson. When I got there, I knew something was
wrong because there were way too many people going in
and out of there. There had to be 10 to 15 people in
there.’’
‘‘All I kept hearing was my baby crying,’’
Jacky said. ‘‘And I was thinking, ‘Why won’t he
stop screaming? Why won’t somebody do something to
help him?’ You don’t know because nobody would tell
us anything.’’
Christopher’s heart was enlarged and unable to pump
blood. Doctors don’t know what caused it, whether it
was a genetic defect or a viral infection. It’s a
question that haunts the Piccininnis as they decide
whether to have more children.
When the doctor finally came out to talk to them, he
told them he wasn’t sure if Christopher would make it
through the night. They called a priest, and Christopher
Piccininni was baptized that night in the hospital.
‘‘I remember feeling ‘Why is this happening to
my baby?’’’ Jacky said.
Christopher made it through the night and even
improved enough on medication to be released. But four
days before his scheduled release date, he crashed
again.
On Sept. 5, one week after he entered St. Joseph’s,
Christopher was transferred to The Mount Sinai Hospital
in Manhattan. Eventually the Piccininnis were given a
choice no parents should ever have to face.
‘‘They told us we could leave him there on the
machines until his heart gave out, or we could try for a
transplant,’’ Jacky said. ‘‘The life expectancy
for a child who receives a transplant at this age is
five to 10 years. We had to decide whether we wanted to
bury our child now or in five years. Do we want to get
to know this child, love him, watch him grow up, only to
let him go?’’
Frank and Jacky got some solace from the Internet,
finding parents throughout the country who had been
through the same ordeal. Some had gone with the
transplant, some hadn’t. Some lost their children,
some hadn’t.
‘‘One woman told me that burying her daughter at
8 weeks was the blackest thing she had ever done,’’
Jacky said.
The Piccininnis placed Christopher’s name on the
list of international donors on Oct. 5. They were told
the average waiting time for an infant donor heart was
100 days.
While they waited, Frank shuttled back and forth from
Manhattan to Teaneck to teach social studies at Thomas
Jefferson Middle School and coach as Jacky remained at
Christopher’s bedside.
‘‘That was the season I was looking forward to
the most,’’ said Piccininni, who led the team to a
9-10-1 record in 2001, a berth in the county tournament,
and a first-round win in the State Group 4 tournament in
his third year at the helm. ‘‘We had 16 seniors. But
what really made the season was how supportive everybody
was. I was alone, and it was tough. I tried everything I
could not to take anything that happened with
Christopher on the field.’’
‘‘I think the soccer was a little bit of a
release for him,’’ said Ron Van Saders, the Teaneck
athletic director who along with the assistants and the
captains helped out with the coaching duties when Frank
couldn’t make it. ‘‘He handled the whole situation
with such dignity and class and mental toughness. He
kept it separate from the program as much as possible.’’
The support has come from all over. Ramapo, N.J.,
boys soccer coach Evan Baumgarten and Frank’s sister,
Keri Levine, each ran the New York City Marathon for the
first time last month and raised more than $11,000 in
donations in honor of Christopher for the New York Organ
Donor Network. The money will be put toward education
programs and donor drives.
The Paramus Catholic boys soccer team passed the hat
and raised $300 that they donated in Baumgarten’s
name. People who attended Teaneck’s county tournament
game last year said a prayer for Christopher before and
after the game. Opposing coaches would simply come up,
shake Frank’s hand, and ask how he and Christopher
were doing.
‘‘The entire soccer community has been terrific,’’
Frank said.
Thanksgiving came and went without a heart. The
Piccininnis and the parents of another child waiting for
a transplant ate their Thanksgiving dinner in the
hospital hallway with the nurses in the unit while
waiting for a donor heart.
‘‘All the stories I’d heard said that it comes
at a time when these kids can’t go another day,’’
Jacky said.
It finally came three weeks later, after several ups
and downs, with Christopher and his parents on their
last legs.
‘‘I was crying my eyes out in the hallway things
had gotten so bad,’’ Jacky said.
‘‘I knew something was up because people started
coming in and out of his room,’’ Frank said. ‘‘Jacky
was in the hallway crying when the nurse came over and
said ‘There’s a phone call for you.’ ‘‘
Christopher received his new heart in a four-hour
operation the morning of Dec. 13, 2001.
‘‘It was bizarre,’’ Jacky said. ‘‘You’re
happy, and in the same split second you’re thinking he’s
going to die on the table. What if the new heart doesn’t
work?’’
‘‘It was harder after the transplant than it was
before,’’ Frank said. ‘‘This is it. Now there’s
no option.’’
The operation was a success, and Christopher left
Mount Sinai on Jan. 9, 2002.
The talks with other families helped the Piccininnis
deal with what would happen, but they couldn’t help
them deal with the feelings that came up, particularly
the guilt.
The guilt that Jacky felt when the child across the
hall passed away, putting her own son one step higher on
the transplant list. The guilt they both felt when they
realized their son’s gift came because of somebody
else’s tragedy. And even the guilt Jacky felt because
she’d had only a few weeks to bond with Christopher
before he got sick.
‘‘You want to feel absolutely awful,’’ she
said. ‘‘As a parent, you want to feel so bad it
hurts. With me, the adrenaline just kicked in. I felt
like I was missing a feeling.’’
That feeling came right after the operation when
Jacky, who had shunned many of the attempts by the
hospital at counseling, sat down and wrote a poem called
‘‘Heaven Sent.’’ One line of the poem reads,
‘‘The heartbeat inside you is a gift from another, a
priceless jewel from a child to whom you are now a
brother.’’
Although she doesn’t know who the donor was, she
sent a copy of the poem along with a letter and some
pictures through the transplant coordinator.
‘‘I want whoever donated that child’s organs to
know that they did the right thing,’’ Jacky said.
‘‘Hopefully they will know that we’re doing the
right thing.’’
The Piccininnis are trying to settle into a normal
life, learning how to be parents again to a child ‘‘with
issues.’’ Last week, they raked the leaves outside
while Christopher ran around the yard putting the leaves
into the bags.
‘‘It’s a brand new heart,’’ Frank said.
‘‘When he cries, you’re afraid it’s going to pop
out of his chest. They tell you not to worry about it,
but it’s hard not to.’’
For the most part, Christopher, who is on
anti-rejection drugs that also diminish his immune
system, must remain in the house and away from other
children to avoid a virus that could be deadly. He can’t
be immunized.
‘‘Eventually we hope to get him together with
other children,’’ Jacky said. ‘‘I will probably
home-school him. He’s going to have to understand he
has to wash his hands when he gets into and out of a
car. He’s going to have to be a little
obsessive-compulsive.’’
They don’t look far ahead, but they do look forward
to the same things other parents do.
‘‘I’d love to get him to one of my practices
and games,’’ Frank said. ‘‘I know I’ll be
excited to see him run around and kick a ball.’’
Until then, they live one day at a time.
‘‘I wouldn’t trade a minute of it,’’ Frank
said.
‘‘Oh, I’d trade a lot of minutes,’’ Jacky
said as Christopher wobbled around at her feet. ‘‘But
not these. We’re better people just for getting the
chance to know this child.’’